So much for informed consent or how my sister saved my breast!

Have you ever heard of DCIS and what do you know about it?  Prior to being diagnosed with what the medical profession calls stage 0 breast cancer in February 2019, I had never heard of Ductal Carcinoma in situ. Let me tell you, that the word Carcinoma sure got my attention and had me shopping for nipple tattoo artists within 12 hours of diagnosis.

I came to my diagnosis in a very different way from most women. Most DCIS is discovered via a mammogram and confirmed with some type of biopsy. My journey was quite different, when I was diagnosed with DCIS, I had never even ever had a mammogram.

My DCIS was diagnosed via the testing of tissue removed during a breast reduction. Unbeknownst to me, tissues removed during surgery are apparently routinely screened for ‘cancer’, so much for ‘informed consent’. Well, 2 months after my breast reduction, my plastic surgeon’s office called to tell me that the surgeon wanted to see me the next day with regards to ‘something’ on my pathology report.

Continue reading


We’re feeling the love from Greenfield Park.

For the last 22 years the Girl Guides of Greenfield Park have held a walk at the beginning of May for beast cancer prevention while donating to Breast Cancer Action Quebec. The Ladies Auxiliary, Branch 94 added its support by holding a BINGO whose proceeds also come to us annually. We always have a great time even if the weather does not cooperate and this year was no different, though we all agreed it was probably the coldest march in May we remember!

Our placards got an update/refresh thanks to Ana Lorcencova who used her artistic talents and school volunteer hours for a great cause!  A big thanks to all the Sparks, Guides, Pathfinders, Rangers, their leaders and parents who walked with us.  And thanks to everyone who made donations, we are thrilled.


Working with young women to become environmental leaders 

Over the past two years I had an amazing and challenging opportunity to work in local public high schools through our program on environmental health. I discovered a lot of things about this younger generation: They are very smart, even those who don’t do well academically.

They are far more informed about the environment than their parents’ generation. They had no trouble understanding the complex issues I was teaching, particularly on toxic substances and hormone disrupting chemicals and their effect on human health and the environment. And they are good at making connections. 

I also learned that gender dynamics have not changed much since I was in high school. The boys in the classes I was in talk much, much more than girls, act out more, jump up to be team captains during competitions, call out their answers, and generally dominate classroom interactions. Now don’t get me wrong, I really liked these guys. They came from very disadvantaged backgrounds about which they could talk clearly and with honesty. We talked a lot about health justice and environmental racism and they had a lot to say. And even now, I can remember their faces and voices as well as their points of view.

But the girls. I had to really work to try and create space for them. It was difficult and I had real trouble with this, despite understanding class dynamics and being committed to their taking their place. Most of the boys took any space as easily as they breathed. And the girls seemed accustomed to this and weren’t going to fight it.

In fact, it seemed easier for them to just keep their heads down and stay quiet. 

Breast Cancer Action Quebec’s Youth Program has a long and rich history. It has taken a variety of forms. Prior to our work in schools, we had a girls’ leadership program funded by Status of Women Canada that offered unique workshops to girls in marginalized communities through partnerships with community groups. 

This work revealed to us again how little space is accorded to girls from disadvantaged places. We generally hear that girls are doing much better than boys academically and it’s the boys who need help. This makes it difficult to see that not all girls are doing well and the ones who aren’t are becoming invisible. Very little is offered to them. In fact, you have to go out to find them and encourage them to come out and get involved. 

That is what this year’s Youth Program aims to do. We want to reach back out to the community groups with whom we worked, encourage these girls to join our workshops and offer an environmental health curriculum combined with leadership activities. 

People in disadvantaged and marginalized communities face much higher levels of environmental health problems and often lack the knowledge and/or resources to take them on. We want to help girls from these communities become the environmental health leaders of their communities. They deserve it and their communities deserve it. 

As a women’s health organization dedicated to prevention, we think it is essential to work with young people to change things for their future. Unfortunately, finding funders for our Youth Program remains a challenge. It seems that many funders see the name Breast Cancer Action Quebec and can’t wrap their minds around why we are doing this. To them, breast cancer means pink ribbons and runs and middle-aged women and not much else. (They have told us this.) They seem to have missed the news on the environmental links to cancer and that prevention is more than recommending that people eat their vegetables and exercise. 

Now we do actually talk to young people about vegetables (among much else). But we talk more about ultra-processed foods, food deserts and food security with the aim of finding collective answers to these social problems. Our work on prevention empowers girls from very marginalized communities to take on the structural changes needed to allow them to take care of their themselves. 

We are very fortunate to benefit from funding from the exceptional Betty Averbach, Solstice and Abe and Ruth Feigelson Foundations for this work, but this does not cover the full costs.

This is why our next fundraising activity is dedicated to our Youth Program. It’s a zumbathon, and it is really fun. It is for people of any age -- even children – and any physical condition.

You can help us offer our youth program with a donation of any amount during our fundraising drive

There is so much to be done. We are keen to do our part. You can help make it happen. 

Thank you so much

If you are interested in seeing the results of our work in high schools, check out this infographic.


Café rencontre

Telling it Like it Is: the Financial Impact of a Serious Illness

When a serious illness interrupts life, the consequences, including the financial consequences, can be devastating.

We are developing tools to help people protect themselves before they land in a dire situation or to help them navigate the financial questions they'd have if diagnosed with a serious, chronic disease.

To kick start the development of this program we are dedicating our next Café rencontre to hearing your stories. Your experience needs not be related to breast cancer. We want to hear from anyone who has been through a major illness, or who has accompanied someone close, and is willing to share the financial impact this had on them.  

Apart from the effects of the disease itself, a person’s financial situation can be altered in profound ways. This is not something most of us consider when our health is good. But when illness strikes, financial hardship can follow: loss of income, sick time and vacation time running out, treatment costs, daily living costs increase (think additional day care, travel to treatments) and long term disability may become a reality.

Please join us. Light refreshments will be served.

Date to be announced

La Maison Parent-Roback, 469 Jean Talon West, Montreal H3N1R4, 2nd floor

Be part of this important discussion.


Deena (left) as panelist at our October Event 2018

One of my favorite people has breast cancer. Again.

Breast Cancer Action Quebec is filled with extraordinary people. But even in this group, Deena Dlusy-Apel stands out. She attended the first open meeting of BCAM as it was called back then and quickly became an integral part of the organization and continues to support our aims to this day. She is one of the most generous and committed people a group like ours could want.
 
This year, Deena was diagnosed with breast cancer. Again. Not a recurrence, a new case. 
 
Deena finds it strange that people are not angry that one person in two will be diagnosed with cancer during their lifetime. She finds the extent to which people just acquiesce to this new normal frustrating and discouraging.
 
For Deena, "We need more research on environmental links to cancer. We need to talk about the everyday exposures that increase our risks. It is kind of depressing that there aren't more studies being done in this area."
Hanging on, Deena Dlusy-Apel
This year, I've been thinking a lot about Deena and felt it was important to share her story and words. I agree that we have not advanced enough in our understanding of the environmental links to breast cancer even though the science has provided much evidence. And the fact that Canada is considered by many as having the weakest chemical regulations of all Western countries testifies to the fact that this is one big uphill battle with resistance in many places.
 
The current state is not normal. As Deena says, people should be angry. We at Breast Cancer Action Quebec will fight this battle as long as we can. But we can only do this with your continued, generous support.

With much gratitude,

Jennifer Beeman, Executive Director
Breast Cancer Action Quebec


Patricia Kearns, Research and Networking Advisor, Breast Cancer Action Quebec

Reflections on My Treatment

I wanted to tell you about my experience because I think there are important aspects that can be helpful for all women.

Following one of my bi-yearly mammograms, in 2013 I needed to have a follow up biopsy as some irregularity had shown up. To meet the breast specialist assigned to my case and find out the results, I brought along my partner Moira and my good friend and colleague Rosanne who had gone through breast cancer.  I most often have someone accompany to appointments like this one. Better having more that one pair of ears listening. On meeting Dr Lutfi, who was not phased by my posse, I learned I had DCIS or Ductal Carcinoma in Situ in my left breast. This was an early stage, non-invasive, slow growing, form of breast cancer. I knew that it did not pose an immediate health threat because I was familiar with DCIS from my work with Breast Cancer Action Quebec.

I knew that there was a discussion in the medical community to reclassify certain low-grade lesions as non-cancerous. Nonetheless, it was then and still is called cancer and regularly treated as such. 

So, I was very happy with the outcome of my appointment with my surgeon. He said that most women when they learn of the presence of any lesion that has abnormal cells they want it removed immediately. After discussing it, Dr. Lutfi and I agreed to proceed with active surveillance, a wait and watch approach.

So, I had yearly mammograms and in August 2015, during one of my check-ups a tumour was discovered in my right breast. A follow up biopsy was done; I received a phone call very early one morning from the doctor’s office with an appointment for that week. I remember arriving to Dr. Lutfi’s office and there being a nurse with him – that when I knew we were in for some serious news. Dr Lutfi explained this was not DCIS; it was Stage 2, Invasive Ductal Carcinoma, Estrogen +.  He explained that I would need surgery -- what he called a partial mastectomy, although he said some people refer to it as a lumpectomy. More tests were being done on the tissue to find out about the HER2 status, whether it was + or - . I would have surgery to remove the tumour and some lymph nodes; more tests would be done on what was removed and the tumour board would decide on the post surgery adjuvant treatments – radiation, chemotherapy and hormonal therapy.

The nurse, Elizabeth, took us into her office where she pulled lots of booklets from her shelves and gave them to us.  When I asked her for my pathology report; she hesitated briefly but then went to ask the doctor for it. I was so happy to have the report in my hands as we left the clinic. Having it let me turn to one of the resources I regularly recommend to women. Breast Cancer.org. where they had a section devoted to reading and understanding your pathology report.

My surgery went very well with no complications and I soon found myself at home with coloring books, delicious meals, exercise regimes and painkillers. I am one of the lucky ones that has a great support circle and I know how important it was.  Rehab was quick and at the follow up with Dr. Lutfi, he referred me to an oncologist. I am not sure now who that was, but I asked if I could see Dr. Thirlwell instead; he had been my sister’s doctor – she had gone through breast cancer two years before – and I thought that made sense for me to see him, as well as Deena’s one of the Board members of BCAQc. Both had great things to say about him. No problem, Dr Lutfi just changed the name on the referral.

Having my pathology report was also very useful when I decided to ask for a second opinion about Dr. Thirlwell’s treatment plan.  I was worried about my health beyond my breasts. Living with Type 1 diabetes for most of my life, I have always been aware of heart health and I wondered about the effects of chemo and radiation on it. Were there choices for the chemo drugs that would be better than others on my heart? Dr Thirlwell was aware and seemed confident in his plan. The late Abby Lippman asked her brother, Marc Lippman, a renowned breast cancer researcher and oncologist if I could contact him. He asked me for my pathology report and what Dr Thirlwell was prescribing. He was 100% behind the plan and I felt my worry dissipate.

 I was given the name of the radiologist I would be seeing and googled Christine Lambert’s name. One piece of research that she had co-authored caught my eye: DEVELOPMENTS IN PARTIAL BREAST IRRADIATION, so on first meeting her I asked if this could be a good thing for me. She of course explained that no, it was not for patients like myself whose cancer had spread into the lymph nodes and that we would be proceeding with 25 sessions of external beam radiation.

I have had great care at the MUHC and I wish all women with breast cancer the same. Remember it is a woman’s right to know – so ask all the questions you want, ask for reports, ask for the doctors you want, ask for a second opinion if that is something you want, it is your right.


BCAQc on Radio Noon Montreal show with Shawn Apel

BCAQc Executive Director, Jennifer Beeman, and Dr Tarek Hijal, radiation oncologist and Director of the Division of Radiation Oncology at the MUHC were happy to answer your questions during Radio Noon Montreal, CBC's English language call in show with Shawn Apel on October 24th.
If you missed the show, you can listen to the broadcast here

Toxic Exposures are a Feminist Issue!
Canadian Women against Toxic Substances

Gender, biology and determinants of health, such as socio-economic status, employment, belonging to racialized groups and Indigenous communities, all play important roles affecting Canadian women’s health in relation to exposures to toxic substances. Canadian Women against Toxic Substances are concerned that the present-day laws which oversee the regulation and control of toxic substances do not adequately account for these factors, leaving women and the next generation vulnerable to a wide range of long-term negative health effects.

The foundation of our environmental regulations - The Canadian Environmental Protection Act, 1999 (CEPA) - is currently under review by the federal government. A serious reform of this legislation is of vital importance to Canadian women, as workers, mothers, caregivers and for all the other essential roles they play in our communities and in all their diverse realities. It is a question of the most fundamental environmental health justice.

Read further and see how exposure to toxic substances is a feminist issue. You may be surprised to learn among other things, that despite fundamental differences in biology between men and women, animal studies that too frequently relied on male-only models still dominate the scientific evidence.

Click here to learn more


To find out how to sign on, contact us at 514-483-1846 or info@acsqc.ca

Quebec civil society takes a stand on the Canadian Environmental Protection Act (CEPA) calling on the federal government to protect human health and the environment.

Over 80 Quebec groups have signed onto a Declaration that was sent to the Honourable Catherine McKenna, Minister of Environment and Climate Change on March 19 with a letter by Jennifer Beeman . This alliance represents a wide swath of Quebec citizens that goes far beyond the traditional environmental movement. They include among others, well-respected research centres and scientists, peri-natality groups, women’s and workers’ groups, shelters and groups that work against violence, collective kitchens, daycares, student, literacy and cultural groups.

The allied groups have committed to supporting the Declaration underscoring important elements of CEPA that need reform, and pressuring the government to follow the recommendations of their own report and bring in reformed legislation.

Read more on how to get involved

The Canadian Environmental Protection Act (CEPA) is the foundation of our environmental regulations and it’s currently under review by the federal government. Along with other environmental groups we have monitored this weak legislation for many years. It is in bad need of reform.

It is up to concerned individuals and groups like ours to put pressure on the government to take action.

Click here to read more and get involved.

Why We Need to Reform the Canadian Environmental Protection Act (CEPA)

As many of you know, our chemical regulatory system allows chemicals to go into production and circulation without proof of their safety. We are then required to fight a reactive battle, toxic substance by toxic substance, to prove their harm and get them out of circulation and out of our environment. In many cases, our exposure to toxic substances continues for decades after bans go into effect.

read more


What happens when patient advocacy groups develop financial ties to the pharmaceutical industry? Sharon Batt investigates this in her new book, Health Advocacy, Inc.: How Pharmaceutical Funding Changed the Breast Cancer Movement.

Health Advocacy Inc.: A reading with Sharon Batt at Concordia University
BCAQc is excited to partner with Concordia University's Ageing + Communication + Technologies (ACT) and engAGE: Concordia's Centre for Research on Aging for this event.
Click here for details.

We Moved!

With our lease at the RCA building in St-Henri coming to an end, an  opportunity presented itself to rent offices in the wonderful Maison Parent-Roback, a stone's throw from Metro Parc. So we jumped at it!

We left St. Henri and the historic RCA building on January 12 where we were happy for almost five years and moved to a new home.

If you have tried to get in touch with us during the last month and we have not responded, please excuse us. Our email server was down for a short time over the holidays. Our telephone system will be up and running in a week or so. Luckily we can keep our original phone number: 514-483-1846, the one we have had for over 25 years. In the meantime you can now email us or message us on Facebook. Your patience is much appreciated.
 
La Maison Parent-Roback, located on rue Jean-Talon in the heart of Parc extension, is owned by a collective of 11 women's groups. Through its members, it reaches more than 1,200 local groups who, in turn, connect with hundreds of thousands of women across Quebec and Canada. So we knew we wanted to be here.

So here we are!

Sabrina Leclerc (our intern this year) draws the winning name

Your generosity continues to amaze us!

We want to say is a BIG THANK YOU! Your donations were incredibly generous this year and it is so encouraging to know that you like what we are doing and support us in our endeavors. Truly, our 2018 activities are going to be very exciting and it is YOU who allows us to do this work.  

And the winner is ...

We just drew the name of the recipient of the Green Beaver gift bag and it's Carolyn Badger. Congratulations Carolyn! Thanks to everyone who participated.


Listen to our inaugural podcast – an interview with Sharon Batt.
Jennifer Beeman asks her some great questions and her answers are passionate and revealing.

Wretched Pink Ribbons. Again.

So here we are again awash in these wretched pink ribbons. They must constitute the most successful marketing campaign ever.

And they are so pernicious. They make us feel touched by and involved in something significant by merely wearing them or buying something with their picture attached.

But what do they say? Nothing, except that thousands of women still go through breast cancer every year. And that is the problem. There is so much that needs to be said that gets buried under the ribbons.

What do we need to be saying?

We need to say that detection is not prevention. Actually bringing down incidence rates has been completely removed from all important discussions. We repeat to women for them to individually bring down their risk without a proper public health strategy to bring down breast cancer rates with a strong, public health program that incorporates environmental health as a central component. Also, in working to prevent breast cancer, we work to prevent a range of diseases.

 

read more


Overwhelmed by pink ribbon blues?

October is Breast Cancer Awareness Month—in case you haven’t noticed, despite pink things all around you demanding your dollars. Breast Cancer Action Quebec is very skeptical of pink ribbon campaigns and the commercialization of breast cancer.

It is well known that companies try to reinforce their image and boost their bottom line by associating themselves with a good cause. But who really benefits, the cause or the company? What if the very products sold—through the promise of finding a cure—are actually contributing to the problem?

read more



Carly’s Reflection

After spending a year as a volunteer with Breast Cancer Action Quebec, the organization became the site of my practicum placement for my Masters of Public Health degree. I came to BCAQc with a background in exploring how the health of our environment impacts food security and our reproductive health.  I was interested in doing my practicum at BCAQc to learn how to apply my new public health skills to social-justice oriented work. BCAQc represented everything I hoped public health could embody: an empowering approach to holistically confronting some of the most compelling environmental and social issues of our time.

Most of my work centered around the Health Connections youth program, which I assisted in the development of and constructed a program logic model for. I also undertook an impact evaluation, creating a questionnaire to evaluate students before and after the program to assess the impacts we made.

We were interested in evaluating if Health Connections increased students’ environmental health literacy, which is embodied in the development of knowledge about environmental health, positive attitudes towards it, and the skills and capacity to take action to create environmentally healthy communities.


Fighting Endocrine Disruptors, One Lip Balm at a Time
A great article by Carly Welham, master's student in Public Health and intern at BCAQc, explains the politics of "Why We DIY"

Over the past few months, Breast Cancer Action Quebec interns have been holding DIY workshops across universities in Montreal, meeting with dozens of young people interested in creating body products free of toxic substances. We have been hosting conversations about how chemicals in products that we use every day affect our bodies, our health, and our environment.

Our reality is that everyday we are exposed to hundreds of chemicals that are harmful to us. As a women's health organization whose mission is to work for the prevention of breast cancer through the elimination of environmental toxicants linked to the disease, there are many reasons why we choose to create alternatives to body products with these toxic ingredients.

read more


Your Triclosan Actions and the UN on Pesticides

With the arrival of spring, we would like to share with you a round up of some of the environmental health news we are keeping on top of. In a few weeks we will be sending our information on our spring activities. It would be wonderful to see you at one of our events soon!

Pesticides

On March 8th 2017, the UN human rights council made public a scathing report which is very clear: pesticides, many of which contain endocrine disrupting chemicals (EDCs), are harmful to human health and the environment and they are used in the service of industry profit, not to combat world hunger as agro-chemical business leads us to believe.

read more

Update on Action against Triclosan

Last year we informed you about the actions of environmental and health groups concerning Triclosan. This ubiquitous antibacterial agent is also an important EDC, is ecotoxic and implicated in antibacterial resistance. You told us you were happy to sign onto petitions asking the government to ban this toxic substance from household and personal care products. Here you will find the final statement, coordinated by the Canadian Environmental Law Association (CELA), that we and 40 other like-minded organizations signed onto and sent to The Honourable Catherine McKenna, Minister of Environment and Climate Change and The Honourable Jane Philpott, Minister of Health on February 24, 2017.

read more

Stay tuned to learn about local actions that you can participate in this spring!


Breast Cancer Action Quebec is the recipient of a special gift!

To our delight, BCAQc has been chosen as the charity being honoured at this year’s spring concert of Montreal’s Yellow Door Choir on May 26 and 27, 2017.

Since 1983, this talented choir has been performing and partnering with local charities using their concerts to support and raise awareness for the good work these groups do. And what good company we are in! Take a look at the list of over 60 community organizations  that the Choir has supported throughout its three decades of singing.

Not only does the Yellow Door Choir donate the profits from the concert’s ticket sales to us but every penny that is made during the intermission bake sales is ours too! We will be posting information on how you can get involved by baking your favorite cookies, cupcakes or squares for the bake sale.

So, save the date for this splendid spring event, tell your friends and we hope to see you all there. It will be a double opportunity to hear an ace choir dedicated to the performance of world music in many languages while supporting us at the same time!

Yellow Door Choir, under the direction of the Roxanne Martel

Spring Concert, May 26 and 27 at the Unitarian Church of Montreal 5035 de Maisonneuve O. (Métro Vendôme).  Tickets: $20; Students and seniors: $15

Take a listen to some highlights from last spring’s concert.

Stay tuned for more news about this.


Jennifer Beeman, Director, Breast Cancer Action Quebec
Written in response to Breast Cancer Awareness Month, October 2016

I am in a strange situation. I am director of a breast cancer organization and I really don’t know what “promoting awareness” of breast cancer means.

Does it mean repeating the fact that one in nine women in Canada will receive a diagnosis of breast cancer at some time in her life? Even when this tells us nothing of what is being done to bring down that statistic (very little)?

Repeating “early diagnosis saves lives”? Even though this doesn’t explain to women that early diagnosis leads to a serious problem of overdiagnosis, which women really don’t understand and about which we are doing very little?

Repeating that we should “run for the cure”? Though this does nothing to prevent our daughters and granddaughters getting the disease?

read more

BCAQc relies on membership dues and private donations to stay in operation. Membership entitles you to advance notice of seminars and workshops as well as a subscription to our electronic newsletter— BCAQc Connected.

A strong membership also helps to substantiate our financial applications for government grants and private foundations. Please consider joining us today!

For twenty five years — with your support — BCAQc has been working hard to get vital information about environmental and chemical links to breast cancer to the public, and we now know that our message is being heard.

We ask you to consider a financial gift to Breast Cancer Action Quebec to help us to continue to get this vital information to the public.

There are many ways you can be involved: volunteer, write a letter to the editor, book an educational workshop for your school, community group or work place.

Engage with us, follow us on social media, share your opinions and ideas – take BCAQc’s message to your community! Be a voice for a change!
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